Seeking Volunteers

The Interview Scheduling Form is located at the bottom of this page. Please scroll down to schedule your interview.

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Welcome to CHRIL.

We provide disability stakeholders with accurate, current, accessible and actionable information on how recent changes in health policy affect the community living and integration of working-age adults with disabilities. While the CHRIL devotes significant time to knowledge translation, our research findings to date have not been widely used in disability advocacy efforts. 

We do good work and try to get our research findings to disability advocates and policymakers. But our tables and graphs just aren’t enough. That’s why we are starting a new project called “Disability Stories about Health Policy.”  The Disabilities Stories Project will help support and contextualize our research findings with personal stories from people with disabilities. This application has been reviewed and approved by the Washington State University Institutional Review Board.

We really want to hear your story.  If you are interested in participating, please notify us via email at  disabilitystories.hp@wsu.edu or by phone at (509) 368-6979. We will then email you a copy of our consent form, you can either email us the consent form back or give us verbal consent on the voicemail number provided. Once you give consent, you will be asked to email us at disabilitystories.hp@wsu.edu and tell us in up to 500 words about your experience as a person with a disability navigating through the US health care system or call and record your story in five minutes or less at (509) 368-6979. We will follow up within 10 business days. Your involvement in this project is completely voluntary. If you wish to drop out of the project at any point, you can do so without penalty. Those who are selected to participate as “health policy advisors” will be given $25 and reimbursed for up to $300 to include transportation expenses and for disability accommodations such as ASL interpreters, assistive listening device, and CART. If additional disability accommodations are required such as an assistant, please notify us in advance. 

What we are looking for.We are particularly interested in hearing how the need for health insurance affects your choices about participating in disability programs or working. But these aren’t the only health policy issues out there, and if you have another story you want to tell, please do so. For the purpose of this project, we are asking for individuals between the ages of 18-64.

Benefits to you. We will review all stories and select those that best illustrate key health policy issues affecting people with disabilities. Up to 40 participants will be designated as “health policy advisors” and receive a $25 cash card. We will then contact these advisors to arrange audio or video interviews.

When and where will the interviews take place? Interviews will be held at the Association of Programs for Rural Independent Living (APRIL) annual meeting in Denver Colorado in October, 2018 and at the WSU Spokane and Pullman campuses. We will edit and share these stories (with appropriate attribution) at research conferences, at meetings with policymakers, and on our website. There is also an option for you to provide your story/experience in a confidential manner. If you do not want your audio or video included on our website or in CHRIL research there will be an option for you to be given a confidential code and your information will not be linked to your name, location, or occupation. 

Thank you for your help, we look forward to hearing from you!

 Cyndy, CHRIL Collaborator of Spokane WA. Cyndy is one of the researchers on the Disability Stories Project. In the recording to the left, she discusses her experiences with health reform as an individual living with a disability.  Image: A woman with brown hair smiling in front of a bookcase.

Cyndy, CHRIL Collaborator of Spokane WA. Cyndy is one of the researchers on the Disability Stories Project. In the recording to the left, she discusses her experiences with health reform as an individual living with a disability.

Image: A woman with brown hair smiling in front of a bookcase.

 

Interview Scheduling Form

Name *
Name
Phone *
Phone
Address (to mail payment)
Address (to mail payment)
Will you be attending the APRIL conference, October 5-8, 2018? *
How do you want to participate in this interview? *
Will you be needing any accommodations to participate in this this interview? *
Someone from our team will be in contact with you to schedule your interview. What is the best way to reach you? *